Factor V Leiden, “An inherited blood-clotting disorder due to a mutation of the blood’s factor V protein.”
It never ends does it?? Grrr. Today I received a letter from my fertility clinic regarding the blood tests posted about “here” that I had done over a year ago now! – Not that it feels like that long, but it is. Now I don’t think I ever posted about those blood results, but I was told over the phone that they all came back clear. A clear hysteroscopy, a clear lot of blood results, a uterine scratch done, ready for another perfect transfer in April 2017. So you can imagine my shock when I received a letter from my doctor about these particular blood tests….. Let alone the fact that I realise they aren’t actually fine AT ALL.
“You are heterozygous for Factor V Leiden which gives you an increased risk of thrombosis, particularly in relation to oral contraceptives and pregnancy. You should be aware of this and consider prophylactic measures for venous thromboembolism in the postpartum period or if undergoing surgery. If you have further questions I suggest that you discuss this with your GP.”
So after a day of googling, and a day of talking with some of the mums in my Waikato NZ infertility page I quickly realise this is not a good, nor a normal thing. While reasonably common; it can lead to serious complications… Complications such as miscarriage, stillbirth, placental abruption, blood clots, high blood pressure, slowed foetal growth.
Now… I WAS on blood thinners as part of my colorodo protocol for this cycle. But I was told my results came back fine; that they were a precaution and that I could stop taking them. As well as being told I could stop taking the progesterone pessaries and progynova tablets earlier than what I was meant too as well. Never mind my history of miscarriage and failed implantation, my absence of bleeding, my length of infertility and so forth… Given that I had an early pregnancy bleed at 6 weeks – I opted to keep taking them; and ended up basically stopping all drugs between 12-15 weeks off memory. There was a big muck up, I was meant to stop taking the drugs at 9/10 weeks; then they upped the time to 14 weeks. Then they dropped it back down. It was all a confusing mess, and I suspect due to lack of communication and investigation into my situation. So basically, I came off all drugs no later than 15 weeks – aspirin included….
Now we’re got a bleed in the mix already, so lets fast forward to my various appointments. At 14 Weeks I ended up in the midwives clinic for an extra appointment due to high blood pressure; I blogged about that “here“. I was having dizzy spells consistently, and feeling faint often. Baby had always been measuring slightly ahead, fairly consistently from day 1 also. Then when the day came that she was induced, If you read my birth story “here” – you would have read about the pains in the same location as my placental attachment, as well as the fact that I had started bleeding , her heart rate started decelerating and doing slightly not normal things – and my own blood pressure had risen again. There was a chance of placental abruption. She was expected to be born at 9lb+, I was expecting a big baby – not a little 7lb baby. My placenta was delivered all gritty and gross, there was not much life left in it. Fast forward again, to post partum stage. I ended up in hospital with high blood pressure and dizzy spells again, I only bled for 2-3 days after giving birth; I barely soaked a pad. All alarm bells for something to some degree, but nothing really showed up as a cause – I become just the one with all the random things.
But today, receiving a letter saying I have this blood condition; and that everything I have experienced can be a side effect from it – safe to say I was pissed. So of course I got googling; and researching. Babies have died from this. Mothers have gone into labour the same way I did; and not delivered in time. Their babies have been oxygen deprived in utero and not born living. The risk of blood clots post partum is a lot higher. Blood clots that become deep vein thrombosis. That can cause death and serious illness. I specifically requested these tests be done in the cycle BEFORE I transferred Emelia as an embryo. I wanted to make sure I was doing the very best to give this cycle a chance. I suspected there was something wrong other than just PCOS,, I KNEW I wasn’t bleeding properly following miscarriages and the start of cycles. Just yesterday I was telling my midwife about my crazy bleeding – or lack of…. I had SO many side effects of this blood condition, yet nothing was ever done about them – because we did not know. Neither me or my midwife had any idea. We just assumed my body was doing crazy things and throwing curveballs at me. We never thought for a second that in my veins, travelling to the placenta could be a blood clotting condition… Was this the cause of all my issues? Highly bloody likely……
And to finish with, “I suggest you discuss this with your GP.” – well that was just the icing on the cake. My pregnancy is over, my post partum stage is over. It’s a bit bloody late to be suggesting I speak to my GP. It would have been nice to know 12 months ago, when I first had the tests done. It would have been nice to let my midwife know, so we could TREAT all these crazy curve-balls…. I am feeling very disappointed, angry, and frustrated. Emelia is fine, she is healthy – she is here; she is alive. But by the sounds of it; she very easily could have not been. Again; kudos to my midwife for her monitoring and double checking; and not hating on my anxiety.. And kudos to her for our quick delivery and induction.
I am going to be snuggling Emelia-Michelle extra tight tonight. Just another several reasons why she is my tiny little miracle. She continues to prove she defied many odds thrown in her path. She is one strong little lady. I want to give my midwife the biggest hug ever; and thank her for protecting my baby. For keeping her alive. For listening to my concerns. Every single time.